Date	Event	Clinical Team/ patient association	Main Organiser	Location
08/05/2021	Brittle Bone Society: Wishbone Day Event	BBS/ORC	Office for Rare Conditions	Zoom
21/04/2021	Discussing fertility in rare conditions; what you need to know.	Office for Rare Conditions	Office for Rare Conditions	Zoom
18/03/2021	Inclusive Living/Self directed Support- Lillian Smith	Office for Rare Conditions	Office for Rare Conditions	Zoom
25/02/2021	What’s new in Rare Conditions? An update from the Office for Rare Conditions for Rare Disease Day 2021	Office for Rare Conditions	Office for Rare Conditions	Zoom
21/01/2021	The Rights of the Child- Dagmar Kerr, Childs health Scotland	Office for Rare Conditions	Office for Rare Conditions	Zoom
08/12/2020	Hypophosphatasia: Diagnosis and management	Office for Rare Conditions	Office for Rare Conditions	Zoom
22/11/2020	Scottish Society of Paediatric Gastroenterology Hepatology and Nutrition Education Day	SSPGHAN	Office for Rare Conditions	Zoom
Thursday 22/10/2020	Patient Advisory Group Monthly meeting	Office for Rare Conditions	Office for Rare Conditions	Zoom
Thursday 17/09/2020	Patient Advisory Group Meeting	Office for Rare Conditions	Office for Rare Conditions	Zoom
Monday 17/08/2020	Early Management of Rare Conditions in the Neonate	NHS GGC/ Office for Rare Conditions	Office for Rare Conditions	Zoom
Thursday 09/07/2020	Zoom information evening	Office for Rare Conditions	Office for Rare Conditions	Zoom
Monday 24th February 2020-Friday 28th February 2020	Rare Disease Day 2020	Office for Rare Conditions	Office for Rare Conditions	Royal Hospital for Children- Atrium
Saturday 25/01/2020	Achondroplasia research studies information session	Complex Bone Service	Office for Rare Conditions / Complex Bone Service	Teaching and learning centre, QEUH and RHC hospital Campus
Saturday 23/11/2019	Festive Fun Event	Office for Rare Conditions	Office for Rare Conditions	Touchbase business centre, Kinning park, Glasgow
Friday 08/11/2019	Glasgow Paediatric Research Day	University of Glasgow, Child Health	Office for Rare Conditions	Teaching and learning centre, QEUH and RHC hospital Campus
Saturday 05/10/2019	Scottish Meeting Primary Ciliary Dyskinesia	Primary Ciliary Dyskinesia Family Support Group Office for Rare Conditions	Primary Ciliary Dyskinesia Family Support Group Office for Rare Conditions	Lab Building, QEUH, Glasgow
Saturday 07/09/2019	Klinefelter’s Syndrome Association Information Event	Klinefelter’s Syndrome Association  Office for Rare Conditions	Klinefelter’s Syndrome Association  Office for Rare Conditions	Lab Building, QEUH, Glasgow
Monday 02/09/2019	Early Management of Rare Conditions in the Neonate	Dr Martina Rodie Office For Rare Conditions	Office for Rare Conditions	New Lister Building, Glasgow Royal Infirmary
Saturday 31st August 2019	Scottish Meeting Tuberous Sclerosis Association	Tuberous Sclerosis Association Office for Rare Conditions	Tuberous Sclerosis Association Office for Rare Conditions	Lab Building, QEUH, Glasgow
Saturday 15/06/2019	Family Fund Information Event		Family Fund Office for Rare Conditions	Lab Building, QEUH, Glasgow
Saturday 08/06/2019	Scottish Differences of Sex Development Network Family Day 2019	Dr Martina Rodie, Consultant Neonatologist	Scottish Differences in Sex Development  Network	The Studio, Hope St Glasgow.
Saturday 23/03/2019	Rare Resource Toolkit Launch for patients and families	Genetic Alliance UK	Genetic Alliance UK Office for Rare Conditions	Touchbase Centre  Kinning Park Glasgow
Monday 18/03/2019	Rare Resource Toolkit Launch for professionals	Genetic Alliance UK	Office for Rare Conditions	Lab Building Seminar Room 1 QEUH & RHC Glasgow

Saturday 02/03/2019

Rare Disease Day‐ Fun Event for Children

Office for Rare Conditions

Office for Rare Conditions

Touchbase Centre Kinning Park Glasgow