What’s new in Rare Conditions? An update from the Office for Rare Conditions.

Thursday 25th February 2021 (5.30pm-7pm UTC)

Join our webinar to celebrate Rare Disease Day 2021 with an update on patient experiences and the latest government strategy.

Register here

Programme:

5.30pmUpdate on Patient Reported Experience Measures (PREMS)Professor Faisal Ahmed
6pmUK Rare Diseases Framework 2021Dr Martina Rodie
6.30pm Discussion