What’s new in Rare Conditions? An update from the Office for Rare Conditions.

Thursday 25th February 2021 (5.30pm-7pm UTC)

Join our webinar to celebrate Rare Disease Day 2021 with an update on patient experiences and the latest government strategy.

Register here


5.30pmUpdate on Patient Reported Experience Measures (PREMS)Professor Faisal Ahmed
6pmUK Rare Diseases Framework 2021Dr Martina Rodie
6.30pm Discussion