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A rare condition is one that affects 5 people or less in 10,000.

In Scotland, 1 in 17 people may be affected by a rare condition at some point in their lifetime, that’s 424,000 people in a population of 5 million.
If a condition has low prevalence it means only small numbers of people in Scotland are affected. In Glasgow, the Office for Rare Conditions, which is supported by the Glasgow Children’s Hospital Charity, the University of Glasgow and Greater Glasgow & Clyde NHS Board works with patients and families affected by rare, low prevalence and undiagnosed conditions and the healthcare professionals who work with them.

Have you completed our Patient Reported Experience Measures Survey?

If you or your child has a rare or undiagnosed condition and attends a hospital in the West of Scotland then we want to hear from you! Click here for more info and to complete the survey.

Recent News

Register for our Rare Disease Day Webinar! Monday 27th February 2023, 1pm-2pm!

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Autumn 2022 Newsletter

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Rare Disease Day

Care for Rare Appeal

Please donate if you can to fund life-changing research and support for people in Scotland living with rare conditions.
With your donations, we can continue funding crucial research to transform treatments and care for patients with rare or undiagnosed conditions.

PLEASE NOTE THAT THE OFFICE FOR RARE CONDITIONS DOES NOT PROVIDE ANY CLINICAL SERVICES AND STAFF ARE NOT ABLE TO ASSIST IN MAKING A DIAGNOSIS, PROVIDING ADVICE ON CLINICAL MANAGEMENT OR MAKING REFERRALS.