Developed by the Patient Advisory Group this brief summary of care is available for all to use. It may be of help when presenting to a new clinical service or Accident & Emergency.
The Office for Rare Conditions runs a webinar series every other month. Follow the link above to see the topics of our previous webinars and access the recordings.
Has your child recently been diagnosed with a rare condition? Are you looking for further support? or want to speak to someone who is going through the same experience? Read our welcome letter to the Office for Rare Conditions!
Dr Mark Hamilton, consultant clinical geneticist at the QEUH and chair of the myotonic dystrophy subgroup of the Scottish Muscle Network, has given a short presentation highlighting the key features of Myotonic Dystrophy and its possible presentations in a range of hospital settings.
BioChem student Elin Cave explored how research into ALL can be more accessible to patients.
Need help recording your presentation online? Follow our guidance through the link above.