Events

We host, co-host, and support a number of events throughout the year, offering a variety of education and support events & initiatives as well as fun events for families.  If you are a patient organisation or a health care professional that would like to organise an event and you would like our support then please follow this link.

Important Update: Unfortunately we have had to cancel all events until the end of June in light of the COVID-19 virus. We are sorry for any inconveniences this may cause and we hope to reschedule the events when allowed to do so.

Upcoming events:

Event Date
Family Fund Information and Support Day: Drumchapel       Cancelled
Family Fund Information and Support Day: Clydebank               Cancelled
NF1 Family information Day (Nerve Tumours UK)Cancelled
CHARGE Syndrome Family day    Cancelled
Scottish Paediatric Tracheostomy Initiative Cancelled
Fragile X Family Day (Fragile X Society)  Cancelled
AVM Vein of Galen Family day                                  Sat 4/7 or 11/7
TSC Support Scotland Family DaySat 29th August
Neonatal Event Aug/Sept
Klinefelter’s Syndrome Association UK Family Day  Sat 05th September
Nephrotic Syndrome Roadshow                                                     Sat 12th September
22q11deletion syndrome Family Day Sat 26th September
Rare Conditions and Learning Difficulties 5-15yrs Family DaySat 03rd October
Rare Conditions and Learning Difficulties 15-25 yrs Family DaySat 24th October
2020 Events

If you would like to know more information on any of these events or are interested in attending, then please let us know by contacting info@officeforrareconditions.org or give us a call on 0141 451 5899.

Office All Past Events