We host, co-host, and support a number of events throughout the year, offering a variety of education and support events & initiatives as well as fun events for families.  If you are a patient organisation or a health care professional that would like to organise an event and you would like our support then please follow this link.

Upcoming events:

Glasgow Series in Rare Conditions

Patient Advisory Group Meetings

If you would like to know more information on any of these events or are interested in attending, then please let us know by contacting or give us a call on 0141 451 5899.

Missed an event? No problem, we record them all:

All Past Events