We host, co-host, and support a number of events throughout the year, offering a variety of education and support events & initiatives as well as fun events for families.  If you are a patient organisation or a health care professional that would like to organise an event and you would like our support then please follow this link.

Upcoming events:

Glasgow Series in Rare Conditions

Patient Advisory Group Bi-Monthly Meeting

If you would like to know more information on any of these events or are interested in attending, then please let us know by contacting or give us a call on 0141 451 5899.

All Past Events