We host, co-host, and support a number of events throughout the year, offering a variety of education and support events & initiatives as well as fun events for families. If you are a patient organisation or a health care professional that would like to organise an event and you would like our support then please follow this link.
Important Update: Unfortunately we have had to cancel all events until the end of June in light of the COVID-19 virus. We are sorry for any inconveniences this may cause and we hope to reschedule the events when allowed to do so.
Upcoming events:
| Event | Date |
| Family Fund Information and Support Day: Drumchapel | Cancelled |
| Family Fund Information and Support Day: Clydebank | Cancelled |
| NF1 Family information Day (Nerve Tumours UK) | Cancelled |
| CHARGE Syndrome Family day | Cancelled |
| Scottish Paediatric Tracheostomy Initiative | Cancelled |
| Fragile X Family Day (Fragile X Society) | Cancelled |
| AVM Vein of Galen Family day | Sat 4/7 or 11/7 |
| TSC Support Scotland Family Day | Sat 29th August |
| Neonatal Event | Aug/Sept |
| Klinefelter’s Syndrome Association UK Family Day | Sat 05th September |
| Nephrotic Syndrome Roadshow | Sat 12th September |
| 22q11deletion syndrome Family Day | Sat 26th September |
| Rare Conditions and Learning Difficulties 5-15yrs Family Day | Sat 03rd October |
| Rare Conditions and Learning Difficulties 15-25 yrs Family Day | Sat 24th October |
If you would like to know more information on any of these events or are interested in attending, then please let us know by contacting info@officeforrareconditions.org or give us a call on 0141 451 5899.
