Office for Rare Conditions Monthly Bulletin Board

Our monthly information bulletin will have the latest updates on support and services available from organisations such as CONTACT, Family Fund and Genetic Alliance.

Make sure to check in each month to keep up to date with latest information!

Contact Scotland By Your Side Project – Reaching Families in Hospital

We know that having a child in hospital can be a stressful and anxious time and parents often face many practical challenges. Our Contact Scotland By Your Side parent adviser, Lynn Shields, is here to provide support to parents and carers – to answer your questions and to make sure you have the right information you need – all without needing an appointment.

New Contact Workshops for Parents in June 

Contact will be running a series of free online workshops for parents and carers in June – dates to be confirmed.  Our welcoming and informative sessions cover a range of topics including Encouraging Positive Behaviour, Preparing for adult life and Helping your child sleep.  If you are interested in attending then drop Lynn an email and she will send you a flyer nearer the time or follow us on Facebook Contact in Scotland Facebook Page for updates. 

Family Fund Power Up Programme

Do you want to make the most out of your money online?

Through our free Power Up Programme we offer a range of bite-sized courses aimed at helping you use the internet to manage your money. The Power Up Source is a place where you can learn whenever it suits you, with support available every step of the way.   

Become a Scottish VIP!

Can you help us shape the future of health and social care services for rare, genetic and undiagnosed conditions in Scotland?