The Steering Committee meets quarterly to discuss the work of the Office. The committee is composed of a representative group of people involved in the management and support of people affected by rare conditions.

Steering Committee Members Area

Professor Faisal Ahmed	Professor of Child Health, University of Glasgow
Professor Julie Brittenden	Director of Research and Innovation, GGC R&D, NHS GGC
Stephen Bowhay	Lead Clinical Pharmacist – Hospital Paediatrics, Royal Hospital for Children, Glasgow
Adam Kelly	Glasgow Children’s Hospital Charity, Head of Trusts & Hospital Programmes
Natalie Frankish	Policy and Engagement Manager for Scotland, Genetic Alliance UK
Dr. Alan Mathers	Chief of Medicine, Women’s & Children’s Services, NHS GGC
Melanie Hutton	General Manager, Royal Hospital for Children, Glasgow
Mandy Meechan	Chief Nurse, Royal Hospital for Children, Glasgow
Arlene Smyth	Chairperson of the Office Patient Advisory Group and Executive Officer for Turner Syndrome Support Society UK
Professor Sameer Zuberi	Consultant Paediatric Neurologist, ScotCRN, R&D, ERN, NHS GGC
Dr. Ruth McGowan	Consultant in Clinical Genetics and Lead Clinician for The Scottish DSD Network
Janice Heggie	Lead Nurse for Neonates, NHS GGC
Diane King	Lead Nurse  – CNS Teams Clinical Nurse Specialist (Renal Transplant)
Dr. Martina Rodie	Clinical Lead, Office for Rare Conditions, Consultant Neonatologist Royal Hospital for Children, Glasgow
Liz Dougan	Project Manager, Office for Rare Conditions
Shannon Mullen	Administrator, Office for Rare Conditions