The Steering Committee meets quarterly to discuss the work of the Office. The committee is composed of a representative group of people involved in the management and support of people affected by rare conditions.
Steering Committee Members Area
Professor Faisal Ahmed | Professor of Child Health, University of Glasgow |
Professor Julie Brittenden | Director of Research and Innovation, GGC R&D, NHS GGC |
Stephen Bowhay | Lead Clinical Pharmacist – Hospital Paediatrics, Royal Hospital for Children, Glasgow |
Adam Kelly | Glasgow Children’s Hospital Charity, Head of Trusts & Hospital Programmes |
Natalie Frankish | Policy and Engagement Manager for Scotland, Genetic Alliance UK |
Dr. Alan Mathers | Chief of Medicine, Women’s & Children’s Services, NHS GGC |
Melanie Hutton | General Manager, Royal Hospital for Children, Glasgow |
Mandy Meechan | Chief Nurse, Royal Hospital for Children, Glasgow |
Arlene Smyth | Chairperson of the Office Patient Advisory Group and Executive Officer for Turner Syndrome Support Society UK |
Professor Sameer Zuberi | Consultant Paediatric Neurologist, ScotCRN, R&D, ERN, NHS GGC |
Dr. Ruth McGowan | Consultant in Clinical Genetics and Lead Clinician for The Scottish DSD Network |
Janice Heggie | Lead Nurse for Neonates, NHS GGC |
Diane King | Lead Nurse – CNS Teams Clinical Nurse Specialist (Renal Transplant) |
Dr. Martina Rodie | Clinical Lead, Office for Rare Conditions, Consultant Neonatologist Royal Hospital for Children, Glasgow |
Liz Dougan | Project Manager, Office for Rare Conditions |
Shannon Mullen | Administrator, Office for Rare Conditions |