The Steering Committee meets quarterly to discuss the work of the Office. The committee is composed of a representative group of people involved in the management and support of people affected by rare conditions.
Members:
Stephen Bowhay, Lead Clinical Pharmacist, NHS Greater Glasgow & Clyde
Professor Julie Brittenden, Research & Development Director, Queen Elizabeth University Hospital
Paul Connor, Policy & Health Economics Manager, Kyowa Kirin
Natalie Frankish, Policy & Engagement Officer for Scotland, Genetic Alliance UK
Dr Iain Horrocks, Consultant Paediatric Neurologist, Royal Hospital for Children, Glasgow
Adam Kelly, Trusts & Giving Manager, Glasgow Children’s Hospital Charity
Dr Alan Mathers, Associate Medical Director Women & Children’s Directorate, Royal Hospital for Children, Glasgow
Dr Ruth McGowan, Consultant in Clinical Genetics, West of Scotland Regional Genetics Service
Steve & Alison Reid-Timoney, the Reid-Timoney Charitable Foundation
Dr Peter Robinson, Consultant Paediatrician in Metabolic Medicine, Royal Hospital for Children, Glasgow
Jen Rogers, Chief Nurse for Paediatric and Neonatal Services. NHS GGC
Arlene Smyth, Executive Officer, Turner Syndrome Support Society
Gregor Walker, Consultant General Paediatric and Neonatal Surgeon, Royal Hospital for Children, Glasgow
Professor Sameer Zuberi, EpiCare Representative, ScotCRN lead for West of Scotland, NHS GGC
Steering Committee Members Area
