The Office for Rare Conditions holds a zoom meeting every 2 months for our Patient Advisory Group. We have recently expanded our PAG to all so anyone can join these monthly meetings where we discuss different topics and have talks from fantastic speakers!
These meetings aim to increase the information accessed by patients and parents and enhance the support that is available to children and adults with rare conditions and their families/carers.
If you are interested in attending the next PAG meeting or want to suggest a topic for future meetings then please email shannon.mullen@glasgow.ac.uk
| Date | Topic | Location |
|---|---|---|
| 23rd July 2022 | Family Fun Event! | Quarriers Conference Centre |
| 17th March 2022 | SPARKS- Counselling; what’s available to help | Zoom |
| 20th January 2022 | Patient Advisory Group Annual General Meeting | Zoom |
| 18th November 2021 | A Parents Experience- Zander and Michelle Simpson | Zoom |
| 16th September 2021 | Child Disability Payment- Lyndsey Maricic | Zoom |
| 22nd July 2021 | Summer Holiday Social | Zoom |
| 20th May 2021 | Lets TALK coming out of Lockdown- Lucy Butterworth SAMH | Zoom |
| 18th March 2021 | Inclusive Living/Self directed Support- Lillian Smith | Zoom |
| 21st January 2021 | The Rights of the Child- Dagmar Kerr, Childs health Scotland | Zoom |
| 10th December 2020 | Wine and cheese holiday celebration | Zoom |
| 19th November 2020 | Carers Scotland- Fiona Collie | Zoom |
| 22nd October 2020 | Changes to hospital/clinical services- Professor Faisal Ahmed | Zoom |
| 17th September 2020 | Patient Survey results- Dr Monica Hytiris PAG restructure- Arlene Smyth and Liz Dougan | Zoom |
| 9th July 2020 | Information evening with Talks from Genetic Alliance UK, CONTACT and Family Fund. | Zoom |
Office for Rare Conditions Glasgow 