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A rare condition affects 5 people or less in 10,000.

In Scotland, 1 in 17 people may be affected by a rare condition at some point in their lifetime, that’s 424,000 people in a population of 5 million. If a condition has low prevalence it means only small numbers of people are affected.

In Glasgow, the Office for Rare Conditions, which is supported by the Glasgow Children’s Hospital Charity, the University of Glasgow and Greater Glasgow & Clyde NHS Board, works with patients and families affected by rare, low prevalence and undiagnosed conditions and the healthcare professionals who work with them.

Have you completed our Patient Reported Experience Measures Survey?

If you or your child has a rare or undiagnosed condition and attends a hospital in the West of Scotland then we want to hear from you!

Click here for more info and to complete the survey.

Recent News

Read our SUMMER NEWSLETTER 2025

Read the Office for Rare Conditions, Glasgow 2017-2024 – a project overview covering our activities and impact over this time. Our focus has been on patient support services, advocacy efforts, research contributions and community engagement.

Check out OfRC patient resources:

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Care for Rare Appeal

Please donate if you can to fund life-changing research and support for people in Scotland living with rare conditions.
With your donations, we can continue funding crucial research to transform treatments and care for patients with rare or undiagnosed conditions.

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Why We Do What We Do

The Office for Rare Conditions is in a unique and privileged position. Based across the Royal Hospital for Children and the Queen Elizabeth University Hospital in Glasgow, we have direct access to patients and families affected by rare conditions.
This connection is at the heart of everything we do. It drives us to keep reaching out, keep supporting, and keep working together to make a difference.
Every conversation, every connection, every step forward—it all matters.
Together, we can continue to build a stronger, more supportive community for those living with rare conditions. 💜
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PLEASE NOTE THAT THE OFFICE FOR RARE CONDITIONS DOES NOT PROVIDE ANY CLINICAL SERVICES AND STAFF ARE NOT ABLE TO ASSIST IN MAKING A DIAGNOSIS, PROVIDING ADVICE ON CLINICAL MANAGEMENT OR MAKING REFERRALS.