| Programme | Speaker | Title | Topic |
| Healthcare Professionals |
| 9:30 | Ms Liz Dougan | Project Manager, Office for Rare Conditions | Introduction/Office for Rare Conditions |
| 9:40 | Dr Martina Rodie | Consultant Neonatologist, Office for Rare Conditions | Transition |
| 9:50 | Dr Anne Devenny | Paediatric Respiratory Consultant, RHC | Respiratory |
| 10:00 | Ms Ali Hall | MSN Paediatric Haematology /Oncology Aftercare Nurse Specialist, RHC | Haematology & Oncology |
| 10:10 | Ms Kirsty Stevenson | Transition Worker | Children’s Hospices Across Scotland |
| 10.20 Break |
| 10:35 | Ms Claire Cairney, Cardiac Nurse Specialist + Dr Maria Ilina, Consultant Paediatric Cardiologist, RHC | Cardiology |
| 10:45 | Ms Sharon Fisher | Epidermolysis Bullosa Paediatric Clinical Nurse Specialist, RHC | Dermatology |
| 10:55 | Dr Guftar Shaikh | Consultant Paediatric Endocrinologist, RHC | Endocrinology |
| 11:05 | Professor Sameer Zuberi | Consultant Paediatric Neurologist, RHC | Neurology |
| 11:15 Break |
| 3rd Sector |
| 11.30 | Donna Tomlin, Information Officer and Project Manager + Lynn Shields, Parent Advisor | CONTACT |
| 11:40 | Rhianne Forrest | Coordinator, CYP Health & Wellbeing Services, Children’s Health Scotland | Children’s Health Scotland |
| 11:50 | Iona Campbell | CIR Project Manager, Spina Bifida Hydrocephalus Scotland | SBH Scotland ‘Early Intervention Support for Young People Transitioning into Adulthood’ |
| 12:00 | Xander Lyons | Young Peoples Worker, Spina Bifida Hydrocephalus Scotland | SBH Scotland ‘Transition Support in Practice’ |
| 12:10 | Hannah Frost, Media Working Group member + Beth Dillon, Trustee | The Luna Project |
| 12:20 Q&A |
Office for Rare Conditions Glasgow 