1pm | Dr Martina Rodie, Office for Rare Conditions & Natalie Frankish, Genetic Alliance UK | Welcome to Rare Disease Day 2023! |
1.05pm | Dr Lucy McKay, Medics for Rare Diseases | Rare Disease 101 |
1.20pm | Zainab Alani & Fatima Alani, RAREAware | Ensuring tomorrow’s doctors are Rare Aware |
1.25pm | Danielle Alexander | Living with a rare condition – my views on the role of the healthcare professional |
1.35pm | Dr Martina Rodie, Office for Rare Conditions | What’s new at the Office for Rare Conditions |
1.40pm | Claire Dinning, Office for Rare Conditions | Patient Navigator role |
1.45pm | Natalie Frankish, Genetic Alliance UK | Supporting healthcare professionals improve the experience of people with rare conditions |
1.50pm | Q&A | |
2.00pm | Event ends | |