Rare Disease Day 2023!

Monday 27th February 2023

Link to watch the webinar!

1pmDr Martina Rodie, Office for Rare Conditions & Natalie Frankish, Genetic Alliance UKWelcome to Rare Disease Day 2023!
1.05pmDr Lucy McKay, Medics for Rare DiseasesRare Disease 101
1.20pmZainab Alani & Fatima Alani, RAREAwareEnsuring tomorrow’s doctors are Rare Aware
1.25pmDanielle AlexanderLiving with a rare condition – my views on the role of the healthcare professional
1.35pmDr Martina Rodie, Office for Rare Conditions What’s new at the Office for Rare Conditions
1.40pmClaire Dinning, Office for Rare Conditions Patient Navigator role
1.45pmNatalie Frankish, Genetic Alliance UKSupporting healthcare professionals improve the experience of people with rare conditions
2.00pmEvent ends