Monday 28th February 2022
Join the Office for Rare Conditions on Rare Disease Day 2022 for our Rare Bone Conditions Webinar as part of the Glasgow Webinar Series in Rare Conditions.
Register here
Programme
| 12.30 | Welcome Office for Rare Conditions, Glasgow Dr Martina Rodie, Clinical Lead Office for Rare Conditions, Glasgow |
| 12.35 | Antenatal & neonatal presentation Dr Helen McDevitt Counselling Consultant Neonatologist, Royal Hospital for Children, Glasgow Childhood presentation and management, The role of the Specialist Bone Service Dr Avril Mason, Consultant Paediatric Bone and Endocrinology, Royal Hospital for Children, Glasgow |
| 13.20 | The ABC of skeletal dysplasia Dr Melita Irving, Consultant clinical geneticist, Guy’s and St Thomas’ NHS Foundation Trust, London |
| 14.00 | Rare Bone Alliances Patricia Osborne, Chief Executive, Brittle Bone Society Helen & Chris Bedford-Gay, Trustees, FOP Friends |
The Glasgow Webinar Series is sponsored by Alexion Pharmaceuticals and Ipsen Ltd .
Office for Rare Conditions Glasgow 