Monday 28th February 2022
Join the Office for Rare Conditions on Rare Disease Day 2022 for our Rare Bone Conditions Webinar as part of the Glasgow Webinar Series in Rare Conditions.
|12.30||Welcome Office for Rare Conditions, Glasgow|
Dr Martina Rodie, Clinical Lead Office for Rare Conditions, Glasgow
|12.35||Antenatal & neonatal presentation|
Dr Helen McDevitt Counselling Consultant Neonatologist, Royal Hospital for Children, Glasgow
Childhood presentation and management, The role of the Specialist Bone Service
Dr Avril Mason, Consultant Paediatric Bone and Endocrinology, Royal Hospital for Children, Glasgow
|13.20||The ABC of skeletal dysplasia|
Dr Melita Irving, Consultant clinical geneticist, Guy’s and St Thomas’ NHS Foundation Trust, London
|14.00||Rare Bone Alliances|
Patricia Osborne, Chief Executive, Brittle Bone Society
Helen & Chris Bedford-Gay, Trustees, FOP Friends
The Glasgow Webinar Series is sponsored by Alexion Pharmaceuticals and Ipsen Ltd .