Rare Bone Conditions Webinar

Monday 28th February 2022

Join the Office for Rare Conditions on Rare Disease Day 2022 for our Rare Bone Conditions Webinar as part of the Glasgow Webinar Series in Rare Conditions.

Register here

Programme

12.30Welcome Office for Rare Conditions, Glasgow
Dr Martina Rodie, Clinical Lead Office for Rare Conditions, Glasgow
12.35Antenatal & neonatal presentation
Dr Helen McDevitt Counselling Consultant Neonatologist, Royal Hospital for Children, Glasgow  
Childhood presentation and management, The role of the Specialist Bone Service
Dr Avril Mason, Consultant Paediatric Bone and Endocrinology, Royal Hospital for Children, Glasgow
13.20The ABC of skeletal dysplasia
Dr Melita Irving, Consultant clinical geneticist, Guy’s and St Thomas’ NHS Foundation Trust, London
14.00Rare Bone Alliances
Patricia Osborne, Chief Executive, Brittle Bone Society
Helen & Chris Bedford-Gay, Trustees, FOP Friends

The Glasgow Webinar Series is sponsored by Alexion Pharmaceuticals and Ipsen Ltd .