The Office for Rare Conditions has established a Patient Advisory Group consisting of parents, carers, and adult patients who receive care at hospitals in Glasgow and the West of Scotland. This group provides a platform for patients, families, and carers to connect, share experiences, and contribute to shaping the work of the Office for Rare Conditions, Glasgow.
Chaired by Arlene Smyth, the group meets regularly to discuss personal healthcare experiences, raise concerns on behalf of themselves or others, share useful resources, and offer mutual support.
The Patient Advisory Group receives support from the Office, and the Chair reports directly to the Office Steering Committee.
Patient Advisory Group Meetings
Contact us to find out when the next meeting is or keep up to date via our PAG member Facebook Group Page. You can find the details of previous PAG meetings here.
Facebook Group
Members regularly post articles and resources on the PAG Facebook Group. This closed group has been created to help patients and families link with each other and share experiences.
Members of the Patient Advisory Group assist with the organisation of patient events hosted by the Office for Rare Conditions.
If you would like further information on our Patient Advisory Group, please get in touch info@officeforrareconditions.org
Office for Rare Conditions Glasgow 