The I-DSD Registry provides the means of connecting clinical and research centres around the world and allows these centres to enter standardised information aimed at improving clinical practice, research and understanding of conditions affecting sex development. More information can be found on the I-DSD and I-CAH websites.
The European Reference Network on rare endocrine conditions (Endo-ERN) aims to improve access to high-quality healthcare for patients with hormonal disorders. More information can be found on the Endo-ERN website.
Office for Rare Conditions Glasgow 